Monday Update

Well, today was a very long day. We arrived at KUMed at 6 a.m. We had to do all the pre-op stuff, then Carter went into surgery at 8. After nearly 2 hours, the Dr. came to talk with us. Here's the report:
He performed the liver biopsy. We should have the preliminary result in a day or two. The liver is "very abnormal," meaning that while most of our livers are similar to a piece of meat (as in liver meat), Carter's seems to be a blob on top of a blob on top of a blob. Not smooth, but gnarled and tough. It could just be an abnormally formed liver, but most likely it is this way because of advanced damage. He had a liver transplant guy come look at it, and he said there's no way that could have all happened since birth, so it must have been being damaged in the womb. This would be inconsistent with biliary atresia. He also saw what might be a gallbladder, although it was in the wrong spot and didn't look like a normal gallbladder. He also saw some bile ducts that might be functioning, but we cannot know for sure. So, to sum up, they are now even more confused than ever. It doesn't seem like biliary atresia, but if it's not, they don't know what it is or what to do with it. Either way, they've got to fix it somehow. So, no real answers yet.
Mom and Dad went home at 10 PM to get some sleep. Our first time ever leaving Carter. He'd had a rough day, but by the time we left he had eaten well and was in a good mood, making faces and talking to Daddy. We will go back early in the morning, and Carter will have a CT Scan. He will have to be sedated so he'll lie still. He has a Kasai procedure tentatively set for next Monday, depending on the results of the biopsy.
Thank you for praying. We felt those prayers all day long, and we know God is working on answering them. A woman in the holding area told a nurse to tell us she saw our baby and is praying for him. Our surgeon told us that he knows prayer does a far better job than his hands could ever do, so we are sure God is at work!!
God bless you all!