Saturday, April 22, 2006

What We Know:


Hello everyone! It's Saturday, and a lovely Saturday indeed. We hope you all get to get out and enjoy the day! We plan to do just that, as our little man will soon be stuck in the hospital for a bit.
Dr. Schropp called Friday. You could tell this was the kind of call he did not want to make. He said the biopsy showed no signs of hepatitis (or liver disease), so it wasn't a problem with the organ itself. He said it identified the problem as "extrahepatic bile duct obstruction"--in other words, the problem lies in the large ducts that carry bile away from the liver. What kind of problem cannot be identified by biopsy, so we aren't sure if it's biliary atresia (where the ducts shrink up and wither away) or if there is blockage, or if perhaps he wasn't born with them or they aren't attached or something.
Either way, he needs to do the Kasai procedure immediately to try to get bile out of the liver. He says there is already great damage and some cirrosis (permanent scarring) to the liver. They believe about 6 months worth, meaning it was already happening when I was about 4 months pregnant. This procedure, if successful, will probably only buy us some time before he needs a transplant. Right now we are trying to focus on this surgery, which will happen Monday. We go at 8 AM, and we'll visit with the doctors first. They want to take a good look at the ducts, liver, esophagus, spleen, kidneys, etc. to check for other damage, missing parts, abnormalities, etc. Then they'll do the kasai, so it will probably be a long surgery.
We have been so blessed through all of this. Gary's work is taking such good care of him and his hours. Dustin's hotel is helping us with a room for the week, so we will only be less than 10 minutes away from him. It's amazing how kind and caring everyone is. Times like this really make you see the good in people. Thank you for your prayers and concern for Carter.
Right now we are playing and he is smiling and laughing and making this really cool noise with his tongue. These are the best times a mommy and daddy could ask for. We know that he will have some serious recovery, and perhaps some sick days ahead of him, but God is in control, and we are continuing to trust in Him!

1 Comments:

At 2:31:00 PM, Anonymous Anonymous said...

Sarah,
Your son is beautiful, congrats. I pray the surgery went well.
I will continue to keep Carter and the rest of the family in my prayers.
Kelly Parvin (formerly Krause, remember me?)

 

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