Well, Monday marked three weeks in the NICU. We had talked about moving down to the PICU (for children up to 18 years), but I'm sure you've heard about the controversy at KUMed, right? Well, the doctor said we should stay away from there until all of that cleared up, and we thought that was a good idea.
Carter did so well with 8 hours off suction, 4 hours on over the past few days that Dr. Schropp upped it to 11 hours off suction, 1 hour on! For most of the day, Carter was in a great mood and didn't seem to be in pain. His belly was soft, and he wasn't leaking too much from his drain. By about 10 p.m., he was getting uncomfortable and fussy. His belly was getting puffier, but all in all, he did very well with the extended time. His body seemed to be absorbing the fluid.
His numbers are still not right, but it seems to be something we'll have to watch over time. His bilirubin is up a bit, and that's discouraging, especially since he looked yellow again last night. However, we are BELIEVING that his Kasai is going to keep working and his liver is going to heal.
Sarah is heading to the hospital now, and Gary will come around 2. We are so very fortunate to be able to spend so much time there. I see many moms who can only be there for a short time in the evenings. While it's easy to judge and say, "Why aren't those moms with their babies all the time?" I know that many of them have other children, jobs, or simply no way to get back and forth. God is showing me daily how great his provision for me really is.