Tuesday, May 16, 2006

Well, Monday marked three weeks in the NICU. We had talked about moving down to the PICU (for children up to 18 years), but I'm sure you've heard about the controversy at KUMed, right? Well, the doctor said we should stay away from there until all of that cleared up, and we thought that was a good idea.
Carter did so well with 8 hours off suction, 4 hours on over the past few days that Dr. Schropp upped it to 11 hours off suction, 1 hour on! For most of the day, Carter was in a great mood and didn't seem to be in pain. His belly was soft, and he wasn't leaking too much from his drain. By about 10 p.m., he was getting uncomfortable and fussy. His belly was getting puffier, but all in all, he did very well with the extended time. His body seemed to be absorbing the fluid.
His numbers are still not right, but it seems to be something we'll have to watch over time. His bilirubin is up a bit, and that's discouraging, especially since he looked yellow again last night. However, we are BELIEVING that his Kasai is going to keep working and his liver is going to heal.
Sarah is heading to the hospital now, and Gary will come around 2. We are so very fortunate to be able to spend so much time there. I see many moms who can only be there for a short time in the evenings. While it's easy to judge and say, "Why aren't those moms with their babies all the time?" I know that many of them have other children, jobs, or simply no way to get back and forth. God is showing me daily how great his provision for me really is.

3 Comments:

At 12:43:00 PM, Anonymous Anonymous said...

one doesn't consider searching for god's blessings, but they are there, no matter the circumstances if one looks.

i have had close family members in the hospital with serious conditions (not my child). it is hard when life is influenced by the numbers and test results. the tests and readings are a tool to guide the doctors, kind of a compass or a stud finder; not a crystal ball. they aren't carter and they do not determine his future. his future is in god's hands, as are we all, even though he has a pretty scary "label" on him.

i will not have computer access for several days. it will be hard not to be able to check on carter's progress. your postings are an encouragement of faith. jane

 
At 1:58:00 PM, Anonymous Anonymous said...

I found the link through the NW A. and am glad to learn more. You are in my prayers!

Camp Buddy - JLM

P.S. Why doesn't Carter have the family beard? Must take after mom...

 
At 5:33:00 PM, Anonymous Anonymous said...

I look forward to reading Carter's progress and seeing how God is working daily in your lives. What a tremendous God we serve! You are so inspirational in your faith and your blogs inspire me! God bless you!

 

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