Tuesday, May 30, 2006

Sometimes I'm fine. I talk with my friends or my family; I might even laugh a bit. I went to the pool today with Becca. We had fun until a family came in--a mom, dad, little boy, and baby. I had to leave. Gary and I had dinner with his family tonight. We played cards and had a great time. And then we drove home. In the stillness of the car we watched the lightning race across the sky. I've always loved storms, the majesty and brilliance of the whole event. It hit me that I never got to watch a storm with Carter. Then I was sad. Sad for me because I feel cheated out of those special moments. Sad for him because he was cheated out of life.
I know he did good. I know his story is still spreading, and new people are reading this blog each day. I know that in some way God is getting glory because we have had "such strong faith" through all of this and because Carter made people "appreciate life." And I'm happy for all of that. Don't get me wrong, I do realize that his life was not wasted. But I miss him.
We went to his grave tonight for the first time. It is beautiful. There were several bouquets, a teddy bear, and even a very special note written to him (God bless you A.M.!) I know he's not there. But his body is. That beautiful little body that I tried so hard to memorize. Those sweet little fingers and toes. Those big brown eyes that seemed to contain so much wisdom and understanding. That round little belly that must have hurt him so. I want so badly to hold him once more. I knew the moment I let go of him that Monday night that my arms would forever be empty, but I could not imagine then the sorrow that would accompany the emptiness.
Gary describes it so well when he says that if he allows himself to really think about it, the pain is unbearable. There are times when i just cannot breathe, when the sadness just overcomes me. I feel ripped apart, punched in the gut, stabbed thru the heart.
I'm not mad at God. I'm not. I don't have the energy to be mad. I'm just disappointed. God must have heard the hundreds of prayers asking for healing for my little boy. He had to have known how much we all wanted it. And yet he chose to let him die. I don't understand this from the One who is supposed to listen to and answer prayer. So many try to comfort with the old addages: "Sometimes his answer is 'no'," or "God gave Carter the ultimate healing." But these words mean nothing to me because my arms are empty.
I never in my life have questioned God's existence. Never once have I doubted the place called heaven. I guess I've never really faced any major loss or obstacle, only minor bumps and curves. But this--this is big. I'm trying so hard to keep my faith. I want to believe that God is here, that Carter is in heaven, and that there is a grand design. But what kind of a god takes away a child from two loving parents? What kind of a god forms the inward parts of a baby and makes so many mistakes?
It is so easy to say that Carter is in heaven, that I'll see him again someday, and that God is here to comfort me. I want these things to be true. But I just hurt to bad right now. I asked for a miracle, we all did. And God let us down. I took off my "expect miracles" bracelet Friday after the funeral. It tore me apart to read those words around my wrist. I realized then that I no longer expected a miracle. I'm sorry Linda and Sharon--I just cannot wear it right now.
I know this is not what I'm supposed to write. But it's what is in my heart at this moment. This middle of the night--can't bear to go to bed until I've reached complete exhaustion--dreading walking past his room moment.
I know that my hurts will lessen with time. My wounds will heal. The sadness will slowly turn to joy as I'm able to recall the happy memories more often than the horrible nightmares. It will come with time. I don't need a response. I just need to sort all of this out on my own.

26 Comments:

At 5:38:00 AM, Anonymous Anonymous said...

Just know that you are loved and prayed for daily. Thank you for being so honest with your feelings, I know it helps you to write. Jake was home this weekend and he sends his love. I haven't heard from Jesse and Shanee this week, they are still traveling.
Love you, Jane & Dan

 
At 6:07:00 AM, Anonymous Anonymous said...

Sarah,
I don't know when you wrote this but I was awake from 3-4:30 this morning praying for you. I couldn't sleep and was banging on the walls of heaven. It seems so inadequate to say how sorry I am and how much you are in my heart (both of you). I don't know what to say other than I am aching for you and praying for you.

Love, Jeanette

 
At 7:29:00 AM, Anonymous Anonymous said...

SARAH,

TO SAY I KNOW HOW YOU FEEL IS QUITE AN EMPTY STATEMENT. I KNOW WHEN I LOST MY PRECIOUS HUSBAND JOHN I TOO SAID THE SAME WORDS YOU ARE SAYING NOW. I TOLD A GRIEF COUNSELOR THAT I FELT LIKE A SIAMESE TWIN THAT HAD BEEN TORN APART. I HEAR YOU SAY THESE SAME WORDS. IT WILL TAKE TIME. YOU ARE IN THE DIFFICULT HEALING STAGE. OTHERS HELP, THEIR WORDS ARE GOOD AND WELL MEANING, THE HURT WILL STILL BE THERE WHEN THEY LEAVE. I KNOW.

YOU ASK HOW GOD COULD HAVE TURNED HIS BACK ON THE PRAYERS OF SO MANY. I ALSO QUESTION THAT - THEN I REMEMBER THAT HE TOO LOST A SON. THE PAIN HAD TO HAVE BEEN AWEFUL FOR HIM ALSO. THE SACRIFICE SO GREAT.

I KNOW YOUR ARMS ACHE FOR THE TOUCH OF CARTER, YOUR MIND IS FRANTIC TO REMEMBER ALL YOU CAN OF HIS SHORT LIFE, YOUR HOME SEEMS SO VERY EMPTY NOW. BUT THINK OF THE THINGS YOU DID HAVE. YOU HAD THE UNCONDITIONAL LOVE OF THE LITTLE ONE WHO LOOKED UPON YOUR FACE AND SAW THE LOVE, WHO LISTENED TO YOU SING AND WAS SOOTHED BY THE SOUND OF YOUR VOICE, WHO FELT YOUR GENTLE TOUCH AND WAS COMFORTED BY IT, WHO FELT YOUR PRESENCE AND KNEW HE WAS LOVED.

TIME WILL HEAL. EACH DAY WILL BRING A LITTLE MORE PEACE. YOU ARE IN GOD'S HANDS AND HE KNOWS YOUR SUFFERING. YOU WILL BE LEAD OUT OF THIS VALLEY OF DARKNESS.

PLEASE CONTINUE TO WRITE. TELL US ABOUT CARTER AND WHAT A BRAVE LITTLE BOY HE WAS. I BELIEVE THROUGH THIS WRITING YOU WILL FIND PEACE.

LOVE YOU AND SENDING ALONG A BIG HUG FOR YOU. TAKE CARE OF YOURSELF AND WATCH OVER GARY. YOU ARE TWO OF THE MOST PRECIOUS PEOPLE I KNOW.

WILMA

 
At 9:33:00 AM, Anonymous Anonymous said...

Days just aren't right, are they? And life is certainly not fair. Love you both & think of Carter daily.
Linda S.

 
At 10:08:00 AM, Anonymous Anonymous said...

I didn't know you guys very well but I always asked Ruth how you guys and Carter were doing. I have an eight month old and I couldn't imagine going through what you guys are going through just thinking about The Hero that you guys brought in this life and the short time you guys got to spend together wasn't fair I don't blame you for felling that way. I know that when I was seven years old my mom died of a serious illness and I blamed GOD but soon I realized that I shouldn't balme him he only did what was best for her. Her also knew what was best for your sweet boy. I know it isn't easy but i will pray for you everyday. With lots of love. Rabecca from Liberty Target.

 
At 10:46:00 AM, Blogger Monica said...

Sarah,
My sweet, sweet Sarah. You know we are all just fumbling around trying to think of something to say, throwing random thoughts out there, hoping that maybe any one of them might ease your pain ever so slightly, if only for a brief moment. I'm sure we are all failing. And I'm sorry. I'm so sorry that during this tragic time in your life, I don't know how to help you, I don't know what I can do for you, if anything. As your friend, I feel so inadequate. It is horrible being on the sidelines of your situation, watching you grieve and hurt, and not being able to put an end to it for you. The only thing I can offer is that I am always here for you. Always praying for you. Always willing to listen to you, take a walk with you, cry with you, or have fun with you to take your mind off things. Whatever you need.
I love you,
Monica

 
At 10:46:00 AM, Blogger Monica said...

This comment has been removed by a blog administrator.

 
At 11:15:00 AM, Anonymous Anonymous said...

Nothing that anyone says will help to fill the hole that is in your heart. Just know that we all love you & are hear to listen to anything and everything you have to say. Sometimes just getting it out helps the most.

 
At 11:17:00 AM, Anonymous Anonymous said...

Dear Sarah and Gary-
I know these words may comfort but only time will ease the pain. You guys were as wonderful for Carter as he was for you, you have to remember that.The 1st night in the NICU you were both so proud- just as you were through his short, precious life. Your dream for "Carter's House" is very special and I know there will be many families that would be grateful for your hospitality. Sarah- you should put that bracelet back on and wear it proudly because one day, when you least expect it, you'll know more than ever just how much Carter's life meant. To you as parents, and to everyone that he touched. Work on that dream and always know that those of us in the KU NICU will be watching for those doors to open! My thoughts and prayers are with you, Kathy

 
At 11:20:00 AM, Anonymous Anonymous said...

Sarah,

I was drawn to read Carter's blog yesterday and I see why. I pray that God help me with my words here so that they bring comfort to you, some peace to you, some love to you as that is my heart's desire. Sarah, I cannot say that I know how you feel because I do not. I can only imagine how you feel and I so understand how unbearable the pain is.
I have struggled with unanswered prayer for years. Since my own father died 30 years ago. I have debated about prayer with all the ministers I have known, including Gene and Scott. Though they have tried to help me through biblical passages, I have never felt at peace with this issue.
My own dad had a severe heart attack on December 12, 1977 when I was 20 (he was 53.) Being a very staunch Catholic back then, I went to church every day, every single day, sometimes twice a day, and prayed for his recovery. I bargained with God, I pleaded. I lit candles at church, very catholic to do. I bargained more. My mom had not worked outside the home, she would be lost without my dad. My brother, even then, suffered from mental illness and struggled in his life. If my dad left, how would we go on?
My dad did slowly recover and was to be put in a regular hospital room on Christmas Day. Yea--prayers had worked. I would keep all those promises to God. I would be a better person. And then on Christmas morning, my dad suffered a fatal heart attack. On Christmas. Jesus' birthday. What was this? What kind of cruel joke is this? How could God do this?
Of course, this life changing event changed who I was and how I looked at God. In order to remain sane, and not bitter, in order to keep my heart warm for others and not stone cold, I was going to have to figure this out.
So my search began for answers and what kind of God is my God. I was raised in the times of Jesus Christ Superstar, of a God and Jesus with heart and compassion.
I'd like to say I worked through this quickly, but I evolved instead. Many days I wanted to turn my back on God, but like you and Gary, knew I could not do that. My faith was in my very heart and soul. But then why?
I know enough of free will, and of an imperfect world. But other preachers would stand at the pulpit and say "Mrs. Jones or whoever is better because of prayer." So--what, did I not pray enough? Did I not pray the right prayers? Did I not have the right people praying with me? How cruel is all of that. And as Scott knows, I still cringe when someone says someone is healed because of their prayer. Because, to me, and the loss of my dad, that statement implies that those who don't recover, did not have prayer. Or the right prayer. Or enough prayer. That may sound irrational but that is what I think when I hear bold statements about someone recovering because of prayer. Now, here's the irony that I cannot even explain--I believe in prayer. But prayer in a different way--I don't know if I can even explain it.
Scott has helped me immensely through this struggle and has shared his thoughts of why. Am I at peace, no.
I shake my head at God. I say "you could have done something!" And yet, even with blessed little Carter, I know God does not puppeteer the world. He doesn't pick jobs or cars for us, or friends, or make students get in to the college of their dreams. But, He is here to love us, comfort us and lift us up--and I believe He does this best through the actions of other people. The people who come to you to comfort you, the people who read your blogs and respond. Carter was born a sick little boy. Why? I do not know. He surely blessed your lives and others during his short short time here, but why so short--I don't know.
Was there a reason for his life? Surely, there was. Was it to bring pain or suffering? No, I do not believe so. But, dear Sarah, I do not have answers for you ---only to share that I kind of know where you come from and know that struggle. I know your life will never be the same, as mine wasn't, but in a different way. I can't say that I can look back on my father's death and go , well, yes, know I understand why that happened because I don't look at life that way.
I hope I do not offend you with what I share--I pray that I help your heart, in even the tiniest bit. I so pray that.
You and Gary are so God's people. Both of you have inspired me to be a better person at different times, and in different ways. You have been a role model for me...and my spiritual life. So, I just think God, look at your faithful people, look at them! But as I write that, I know God is crying too. He knows and feels your pain. He knows it was too soon for Carter to come home---but that imperfect world we live in...is not perfect. Though we have come such a long long way in the medical field keeping people alive, fixing things--sometimes the doctors can't even change imperfectness. Will what they did with Carter help with others in the future? Oh yes, I do believe that. Medical advances are just amazing--but sometimes not quick enough. Not advanced enough when we need it.
I have rambled now and we close with a I love you and God loves you and God's people love you and we are still here for you. Still praying--yes, I still pray. Very much. Praying for strength for you, comfort for you and hope.
It may be a dark place right now where you are but you are not alone---your many friends and family walk with you as you walk through this.
Godspeed, friend.
Love,Chris Danford

 
At 1:43:00 PM, Anonymous Anonymous said...

Bless This Family With Eternal Grace

Copyright Kerri A. Gerke



Lord, be with these parents and ease their suffering

Their child was their ultimate offering

Let them find comfort in Your arms

Knowing their child faces no more harm

Losing a child seems so wrong

Help them move on now that he is gone

Their angel has gone home at last

Never to feel the pains of past

The parental love will forever be

Breaking the boundaries of eternity

An emptiness is left behind

This family needs You during this time

Help them to grieve the child they love

Help them find comfort in his eternity above

Their son forever will be in their hearts

This child knows they are only a life apart

For there will come a glorious day

This family will reunite in Your name

In Your home of eternal splendor

The pain felt now, never again remembered

Ease this family’s pain, holding them in your hand

Until such time as You decide they leave this land

Once again to be with their son dear

And again to their heart, hold him near

From this world was taken an angelic face

Now Lord, hold this family in your eternal grace

 
At 2:11:00 PM, Anonymous Anonymous said...

SARAH&GARY
MY SON TELLS ME CARTER IS AN ANGEL.
HI IS WITH GOD SO HE CAN WATCH OVER THE BABY WE NEVER SWA.
WE LOST TATH BABY IN EARLY PRAGNACY.
YOU MY SAY TATH IS BATTER THAN SEE THE BABY AND LOSINET,BUT I SAY LOST IS LOST.
I LOVE YOU FOR HELPING ME AND MY PAIN.
M.H

 
At 2:59:00 PM, Anonymous Anonymous said...

Dearest Sarah and Gary, So I have looked at this entery on and off all day long debateing with myself about if I shoudl comment or not. I know you all are cryed out, pryaed out, "I am sorried" out it is nice to know we are all still here waiting to catch you all you have to do is fall..... I have never been more devoted to anything in my life and I am determined to help you and Gary get your dream going I will tell whoever I have to. I am still here to help you all with your dream as everyone else. The day I came to see carter and we talked about your dream and you told me that you wanted to run a place like that, I literally got chills. All the stuff you were going through and you wanted to help others like you. This would be a great thing for you because not only could you be helping to provide a place for parents to stay while there sick children are in the hospital but "YOU" know exactly how they feel and can help in many, many other ways. When you are ready i would like to have you and gary met me for dinner so i can help get this dream started. I still want to submit this like I had already talked to you about... I am still here just waiting until you are ready. I love you all very much. Moriah

 
At 3:02:00 PM, Anonymous Anonymous said...

by his wounds, we are healed....

through your honesty and willingness to make yourselves vulnerable and open, you are helping others heal, by your wounds.....

i know that isn't your purpose. however, through your tragedy, you are helping others find their way.....

there are no answers on a human level of understanding. there are no answers to be had to "why?" over the years, my understanding of miracle changed from absolute healing to a different level. perhaps the miracle is having carter for 2 months instead of days. perhaps the miracle is the good times, the support and love of family, friends and strangers, the outreach you have because of carter's life. they aren't the miracle you desired, but they are miraculous.

in my own life, i have pondered. if our life is about the journey. the journey leads to eternal life with god. from a godly perspective, with eternity in mind, is there a difference between 2 hours, 2 months, two years, two hundred years? i don't know.

when my baby died, in the beginning, there was no room for anger. i was too full of pain. when the pain eased, the anger came. in time, the anger went. it took a long time to trust god again, in my opinion he hadn't proven himself to be very trustworthy. in time, trust returned too. understanding never came, at least not in these first 30 years, but peace came. acceptance came. hurt eased. joy came back into my life. so gradually, i didn't even notice it at first. peace will return. joy will return. i pray god's peace on you until that happens.

 
At 3:21:00 PM, Anonymous Anonymous said...

When I was buying flowers for Carter's funeral, I had to explain to the lady working there what I wanted and why. That it wasn't typical funeral flowers.

What suprised me is that the lady began telling me of her son that was sick and that she lost at 4 months old. She told me how she was glad that God gave her to him even though he was sick because she was the person that would take care of him the best. She said that to her he would always be her baby. And with this story her eyes filled up with tears. And she was in her 40s.

I'm going to go against the grain of everyone else. I'm not sure if your grief will ever be less. Your sadness at losing a child always there, but maybe, hopefully as days go by more happy moments will fill in where the sad moments are now.

I understand where you question God and his wisdom. I watched the pain that you went through and I have also watched my friend and coworker lose her baby when she was 16 weeks pregnant.

To me God has a lot to answer for. A lot to explain. Maybe someday we will find out the reasons for all he does. If he picks and chooses randomly or if he just gives us obsticles for a reason.

You have the right to question, the right to be angry, but the ministry that I saw in you during Carter's sickness I hope you don't lose.

Keep sharing we are listening.

your still in my thoughts

whitney

 
At 4:05:00 PM, Anonymous Anonymous said...

my heart hurts for you.
Jenny D.

 
At 4:49:00 PM, Anonymous Anonymous said...

Sarah,
Just read your message. I totally understand. I felt the same way after Candice's Accident, but felt like I had to be strong for everyone else. You have to get your feelings out. It is part of the healing process. Don't appologize. God totally understands where you are coming from, and so does everyone else. Just remember we love you dearly, and are praying that you find peace in your loss. Put your feelings in a journal or just start to write a book. Keep everything you have written in this Website in a journal, you might need to look back on them someday or share them with another mom that may go through a similar thing. You mean so much to our family and it breaks my heart to hear you are hurting so badly. I just wanted to run up and hug you at the funeral. We love you Sarah, and I am sure God will feel your arms again someday, when you are ready.
Linda Minear

 
At 6:47:00 AM, Anonymous Anonymous said...

GARY AND SARAH,
I'M BRANDIE, I WORK WITH ANNETTA. I JUST READ YOUR LAST ENTRY, AND I KNOW EXACTLY HOW YOU FEEL. MY DAD DIED 3 WEEKS AGO TODAY, AND AT TIMES I DON'T UNDERSTAND. EVERYONE MEANS WELL WHEN THEY SAY "GOD HAD A GREATER NEED FOR HIM THAN WE DID", OR "GOD WILL NEVER GIVE US MORE THAN WE CAN HANDLE" BUT I WANT TO BE SELFISH, I STILL WANT HIM HERE WITH ME!!! BUT DEEP DOWN I KNOW IT IS MY FAITH IN GODS PLAN THAT IS GETTING ME THROUGH!!! MY HEART TRULY GOES OUT TO YOU AND YOUR FAMILY!!!
DON'T GIVE UP!!
BRANDIE

 
At 10:39:00 AM, Anonymous Anonymous said...

If you had a letter from God..
My name is Kim Hubbard and my husband and I attend chuch with the Neely's. We don't have children at all because we both have cerebral palsy. When you talked about you and Gary being parents even it was for a short time, I understood that desire that we have, especially as Christian couples.

I wanted try to communicate what I think God would say to you guys if he wrote a letter to you. I think he would remind you of the ovehelming love he has for you and Gary. I think He would remind you that although earthy life for you seems like forever right now, it is, in reality, a very short time and eternity is where you will be spending with Him and Carter and all those who have gone to Heaven prior to you. I think He would remind you that, as his word promises, his plans for you are good and that those who mourn will be comforted by His Holy Spirit and that your pain, just as His pain, will not be wasted.

In Him, Kim

 
At 3:13:00 PM, Anonymous Anonymous said...

I hope that the love of family, friends and even strangers has helped. I don't remember knowing a family that is loved as much as the 3 of you. Keep the faith and use the strength that you receive to continue your mission. You are never alone.
Love, Becky

 
At 10:20:00 PM, Anonymous Anonymous said...

I'm not sure where to start...I just did read all of your posts this evening and have been truely touched by your little angel's story. I knew nothing about little Carter until today when I happened to pick up a Lathrop paper in town and read the cover story that Pauli S. had published...I was teary eyed through the entire article and couldn't wait to log on to your website to read the whole story! I also graduated from Lathrop (92)..I remember you Sarah only for the fact you and my cousin were in the same graduating class...you and your husband are incredible people and parents! My husband and I have 2 wonderful kids and I can not start to imagine your pain. You will be in our prayers! I only wish I would have learned of Carter sooner...God Bless you and keep you both! Kim (Gray) Filley

 
At 1:40:00 PM, Anonymous Anonymous said...

I've been reading your blogs and keeping updated on you two. I can't say that you will be alright, because no one knows that. But i write alot of poems, and baby Carter helped me write this poem and I hope that it will make you two proud.

Wishes
If I could have a lifetime wish
A dream that would come true.
I'd pray to God with all my heart for
yesterday and you..
A thousand words can't bring you back,
I know because I have tried.
And neither will a million tears
I know because I've cried.
You left behind my broken heart
and happy memories too.
I never wanted memories,
I only wanted you.

 
At 10:10:00 PM, Anonymous Anonymous said...

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At 6:54:00 PM, Blogger Jenn Ross said...

One year ago today, I experienced the worst day of my nursing career and one of the worst of my life. My heart still aches for you. I want you to know we remember Carter and we are all continuing to pray for you.
--Jenn Ross (Mueller), RN

 

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